Alzheimer’s Association
Click to download a copy of their brochure.
Contents:
- Honoring the person’s wishes
- Understanding treatment options
- Making informed decisions
- Resolving family conflicts
- Arranging for a brain autopsy
- Terms you should know
Parkinson’s Foundation
Click here to go to their website.
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.
National Multiple Sclerosis Society
Click here to go to their website.
In multiple sclerosis, damage to the myelin in the central nervous system (CNS) — and to the nerve fibers themselves — interferes with the transmission of nerve signals between the brain and spinal cord and other parts of the body.
ALS Association
Click to go to their website.
The Western Pennsylvania Chapter supports people living with ALS and their loved ones through services and education in 31 central and western Pennsylvania counties. We leave no stone unturned in search for the cure of this progressive neurodegenerative disease.
American Heart Association
For nearly 100 years, we’ve been fighting heart disease and stroke, striving to save and improve lives.
American Cancer Society
Whether you or someone you love has cancer, knowing what to expect can help you cope. From basic information about cancer and its causes to in-depth information on specific cancer types – including risk factors, early detection, diagnosis, and treatment options – you’ll find it here.
Centers for Medicare & Medicaid Services
Click here to go to their website.
The Federal Health and Human Services Medicare website with information on the two healthcare programs as well as regulations and guidelines.
Hospice Association of America
Click here to go to their website.
A national organization representing more than 2,800 hospices and thousands of caregivers and volunteers who serve terminally ill patients and their families.
Hospice Foundation of America
Click here to go to their website.
Provides information to help people cope professionally and personally who are dealing with terminal illness, death and the process of grief and bereavement.
National Hospice and Palliative Care Organization
Click here to go to their website.
Resource information and education on end of life care and bereavement.
Association for Death Education and Counseling
Click here to go to their website.
A multidisciplinary professional organization dedicated to promoting excellence in death education, bereavement counseling and care of the dying.
CaringInfo
Click here to go to their website.
CaringInfo is a program of the National Hospice and Palliative Care Organization, providing free resources to help people make decisions about end-of-life care and services before a crisis.
Advance Directives State by State
Click here to go to their website.
CaringInfo provides free advance directives and instructions for each state that can be opened as a PDF (Portable Document Format) file.
American Bar Association
Tool Kit for Health Care Advance Planning, click here to go to their website.
Good advance planning for health care decisions is, in reality, a continuing conversation–about values, priorities, the meaning of one’s life, and quality of life. To help you in this process, ABA’s tool kit contains a variety of self-help worksheets, suggestions, and resources. There are currently 9 tools in all, each clearly labeled and user-friendly. The Tool Kit does not create a formal advance directive for you. Instead, it helps you do the much harder job of discovering, clarifying, and communicating what is important to you in the face of serious illness.